Today, our group was going to Shamian Island and the Pearl Market, but Gianna is now pretty sick again. Poor kid has been sick almost this whole trip, but today she looked worse and had a fever, so I took one for the team and stayed in the hotel room with her. I kept Tallulah here too since the outing would last well into her naptime and we are learning that this girl NEEDS her naps. (By the way, if anyone wants to know any of the latest developments on either Crimea or the missing plane, after watching an entire day of the BBC, I'm your girl.) After some Tylenol this afternoon, Gianna felt a little better, so we walked around the beautiful grounds of our hotel to get some fresh air.
Tallulah used to be terrified of the elevator, but she learned pretty quickly that getting on the elevator = going somewhere = amazing time! She LOVES getting out and about. In that book, "Room", I mentioned before, the little boy has difficulty distinguishing between what's real and not real. I think she's going through some of the same thing. She points to EVERYTHING and says, "Eh?" and looks at me, like, "What is that?" I tell her the name and she wants to touch it. She absolutely loves exploring and seeing new things. She was deeply offended this morning when Nathan and the other girls got in the elevator and left her behind. But we had a great time walking around looking at waterfalls and koi ponds once G was feeling up to it.
When we first got her referral, we were scared by her measurements, which are so far off any growth chart. I have a go-to doctor that I call who specializes in reviewing medical files of these kids. Her name is Jeri Jenista and she is known for giving the worst case scenario based on the info she's given. I appreciate this because I think it's best to know what the worst possible outcome could be. With Tallulah, she was most concerned about her tiny head circumference and indicated that this in conjunction with her cleft could indicate a syndrome at play. The biggest challenge we discovered any of these syndromes could hold would be low IQ/learning disabilities. But we decided that we could handle that if it were to be and have the resources to support a child who may need extra support in that way.
But as of right now, I see NO signs of low IQ or other issues that Dr. Jenista informed us could be present. She makes very quick associations between things (TV and remote, pack of Wet Wipes and hand cleaning, which lids go on which bottles or drinks, elevators and good times, smacking herself on the head and everyone around her laughing--on second thought, maybe I should have her IQ checked...?). She has a very healthy sense off curiousity and you can literally see on her face when she finally "gets" how something works or what something means. She is beginning to understand some words and sometimes tries to imitate them. I'm still going to have her tested when we get home to see if she needs any therapy or other support, but I'd say she is probably right on par with any other 20 month old in most motor and cognitive skills. Emotionally, she is also surprisingly typical, which is AMAZING given where she's come from. She is incredibly motor driven and busy, which leads to her great need for sleep. She can nap like nobody's business and slept 12 hours straight last night.
Our biggest challenge that I can see so far will be speech. Of course, we can't really begin to work on this until her lip and palate are repaired, but it's very encouraging to see her already trying. Knowing how motivated she is, I can already tell she will work her buns off in speech therapy and will be fighting with her sisters in no time. Some have asked when her first surgery will be. We are meeting with her surgeon again in the first week or two after we get home. They usually schedule the surgery about 6-8 weeks after that. It will be the biggest and most painful one, so I think the timing will be good. She'll be home long enough to get to know us well and vice versa, and to understand that we'll be there to comfort her.
Post nap photos:
Regretfully, I sampled some food tonight from a "Mexican" food place across the street called Mr. Pancho's. I'm beginning to feel not so hot. I have a feeling I'll be hanging out in the bathroom pretty soon. I just hope it goes away before I have to be coherent at the consulate tomorrow. Goodnight from our little gangsta. (These PJs are size 18 months by the way!)